SUDEP & Epilepsy Risks
There are risks associated with epilepsy, so having key, up-to-date information is important to help manage them.
Finding out more information about epilepsy, the risks (such as SUDEP), managing and talking about it, help to balance risk and help a person to live well with epilepsy.
The main reasons why people with epilepsy die are accidents, drowning, Status Epilepticus, suicide or Sudden Unexpected Death in Epilepsy (SUDEP). SUDEP is a significant cause of death for people with epilepsy.
The cause of SUDEP is not yet known. Researchers are investigating a range of possibilities such as the effect of seizures on breathing and the heart.
Having active seizures puts you at risk of injury and death, and there are certain types of seizure which research has shown increase a person’s risk of SUDEP.
But researchers have identified key risk factors that can increase risk of SUDEP – and we know that for many people there are positive actions which can be taken to reduce these risks. Our Downloads and Get Involved pages have tips on reducing risks.
Research has shown that epilepsy risk factors vary between people with epilepsy, and that the risks they may have can change over time (sometimes quite quickly). So it is important to know about these risks and to review them regularly, so help can be given to reduce them where possible.
More information about SUDEP and epilepsy risks can be found here.
You can also learn more at SUDEP Global Conversation which is an international knowledge repository about SUDEP and epilepsy mortality. Containing research since 2005, it also shares family stories of those who’ve lost loved ones to epilepsy.