The Bereaved

SUDEP Action Day is a day to remember all those who have died from epilepsy, including SUDEP,

and to raise awareness of the risks, so that lives may be saved.

No person is truly ever alone.

Those who live no more,

whom we loved,

echo still within our thoughts,

our words, our hearts.

And what they did

and who they were

becomes a part of all that we are,


Richard Fife

We invite you to join us on the 20 October

If you wish to join with us and commemorate the life of someone who has died, you can share a photo and their name via Facebook and Twitter.

If you would like, you can also set up a Much Loved tribute for your loved one as a special place to share thoughts, poems and messages.

While SUDEP Action Day is intended to help shine a light on SUDEP to help raise awareness of the risk of it, we must not forget the pain of grief felt by all those bereaved ~ our thoughts are with you.


We understand that SUDEP Action Day can intensify memories and emotions of losing your loved one. Please know we are here to help and support you in any way we can.

We provide ongoing support services based in the UK and we are here for you should you need us. Find out more here.

For dedicated and confidential support, please email


Campaigning for Change

After losing someone to an epilepsy related death many go on to raise awareness of the risks associated with epilepsy. Some campaign for better services, or visit their health providers with information in the hope that what they do will reduce the number of deaths. 

If you would like to get involved in this year’s campaign you could:

1. Share your story with us – tell us about your loved one, and about why knowing about epilepsy risks and SUDEP is so important. If you’d like to share your story with us as a My Story, part of the SUDEP Global Conversation, or as a case study to help raise awareness, please .

2. Help research into epilepsy related deaths and bereavement – Could you support this vital research helping experts learn lessons from epilepsy deaths to help save future lives and highlight the needs of people bereaved by epilepsy? Visit the Epilepsy Deaths Register to take part.

  • You can also share your experiences of how the COVID-19 pandemic has impacted on you, your bereavement and how you’ve been able to remember your loved one, through this international research project.

3. Raise awareness of SUDEP, epilepsy deaths and epilepsy risks by taking part in one of our campaigner tasks.

4. Help us to continue to speak up to save lives by holding a My Way to 5K awareness event.

On Friday 23rd October 2020, SUDEP Action is teaming-up with the SUDEP Awareness Walk for a special SUDEP Action Day MyWayto5K event.

Walk, run, cycle, scoot, hike, climb, use a wheelchair or push a pram, on the Day, or over a few days – however you choose to reach your 5K, together we will be remembering and raising vital awareness to help save lives.