People with Epilepsy

Thank you for supporting SUDEP Action Day!

Join us this year, whether that’s having a conversation with your doctor about epilepsy risks or sharing vital information with others on SUDEP.

Below are some ideas of how you can get involved. You may also find extra ideas on your local epilepsy organisation’s website. You can find a list of those supporting the day here.

Don’t forget to join us over on our Facebook event page to show you’re supporting the day!

How you can #SpeakUp2SaveLives:

In just a few simple actions, you can make a real difference to others this SUDEP Action Day!


Top Tips

1. Learn as much as you can about epilepsy risks, so you know how they apply to you, and what to look out for if your epilepsy, seizures, health or lifestyle, changes:

a) Check out our What is SUDEP? and Downloads pages for key information and advice: understanding your condition is a powerful step to reducing risk. You can also find more information, tools and resources to help here.

b) Talk to your health professionals (at your next appointment) about SUDEP and any positive actions you can take to minimise risk

c) Do you belong to any epilepsy groups? Share this information with them too

2. Check your epilepsy risks so you can take positive steps to reduce any you have. Remember epilepsy risks change over time and each person’s risks can be different:

a) Consider using a seizure diary or app to help you keep an eye on your epilepsy: even if you are seizure free or your seizures are controlled, it can still help!

b) Make sure you have a yearly epilepsy review with your health professional to check for any changes

c) Check out any national epilepsy guidelines for information to help you know the care to expect


– Taking your epilepsy medication regularly and reliably is one of the best ways to help reduce your epilepsy risks

– Don’t make any changes to do with your epilepsy or medications without speaking to your health professional first

If you’re worried about SUDEP or your epilepsy risks, please speak to your health professional and don’t make any changes to your medication or treatments before doing so

On Friday 23rd October 2020, SUDEP Action is teaming-up with the SUDEP Awareness Walk for a special SUDEP Action Day MyWayto5K event.

Walk, run, cycle, scoot, hike, climb, use a wheelchair or push a pram, on the Day, or over a few days – however you choose to reach your 5K, together we will be remembering and raising vital awareness to help save lives.