About the Campaign

 Launched on 23 October 2014 by SUDEP Action (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.

#SUDEPACTIONDAY2021

 Why is it  called SUDEP Action Day?

Because there are 21 epilepsy deaths a week in the UK alone – awareness is not enough, it’s #TimeToChange

That is why from 2017, this international day, supported by organisations across the world, is changing its name from Awareness to Action. We hope you join us again this year in leading the way however you can, wherever you are in the world.

Not everyone with epilepsy is aware of, or told about SUDEP (Sudden Unexpected Death In Epilepsy) and epilepsy risks, which can put them in danger of worsening seizures, injury or of dying prematurely. Some health professionals worry that discussing these risks could frighten their patients. But these negative outcomes can be prevented for many people with epilepsy; and openly discussing these risks allows them to make informed choices about treatment and lifestyle and helps them take steps to reduce any risks.

People with epilepsy & their families WANT to be told about SUDEP and epilepsy risks. Many bereaved families were NOT told about SUDEP & wish that this vital information had been shared as it might have saved their loved one’s life.

It is #Time2Change this. So that every person with epilepsy, their families and health professional are not only aware of these risks (which can lead to death if ignored) but are able to take an active role in discussing, reviewing and reducing them.

Find out how you can #TimeToChange and join us for SUDEP Action Day 2021: