About the Campaign

 Launched on 23 October 2014 by SUDEP Action (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.


 Why is it  called SUDEP Action Day?

Because there are 21 epilepsy deaths a week in the UK alone – awareness is not enough, it’s time to #SpeakUp2SaveLives

That is why from 2017, this international day, supported by organisations across the world, is changing its name from Awareness to Action. We hope you join us again this year in leading the way however you can, wherever you are in the world.

As leaders in SUDEP and epilepsy deaths for over 25 years, SUDEP Action know the topic of SUDEP raises questions and can be worrying to think about. But SUDEP Action Day is here to help people start talking about epilepsy and take positive steps towards reducing epilepsy risks.

The pandemic has highlighted huge inequalities and we know that SUDEP and epilepsy deaths are one of the neglected areas, made worse by COVID-19. Thousands of people with epilepsy, their carers and health workers report epilepsy risk has worsened, and bereaved families say pain they have lived with for decades has been made worse during 2020.

That is why this year we want you to #SpeakUp2SaveLives and encourage vital conversations on epilepsy risks and SUDEP.

Whether you choose to do one thing or five (or more!) if you #SpeakUp2SaveLives you will be raising much needed awareness  which could save lives through sharing risk factors, asking questions, writing to your MP or talking about your epilepsy with friends and family.

Together we can #SpeakUp2SaveLives this SUDEP Action Day!

Find out how you can #SpeakUp2SaveLives and join us for SUDEP Action Day 2020: