The Bereaved

SUDEP Action Day is a day to remember all those who have died from SUDEP and to raise awareness of the risks, so that lives may be saved.

“We do not have to rely on memories to recapture the spirit of those we have loved and lost – they live within our souls in some perfect sanctuary which even death cannot destroy.”

Nan Witcomb

We invite you to join us 

If you wish to join with us and commemorate the life of someone who has died, you can share a photo and their name via Facebook and Twitter using the hashtags:

#SUDEPActionDay2019 and #InMemory

If you would like, you can also set up a Much Loved tribute for your loved one as a special place to share thoughts, poems and messages.

Other epilepsy-related deaths:

While remembering those who have died from SUDEP, we also ask that you remember the people who have died from other epilepsy-related causes.

While SUDEP Action Day is intended to help shine a light on SUDEP to help raise awareness of the risk of it, we must not forget the pain of grief felt by all those bereaved ~ our thoughts are with you.


We understand that SUDEP Action Day can intensify memories and emotions of losing your loved one. Please know we are here to help and support you in any way we can.

We provide ongoing support services based in the UK and we are here for you should you need us. Find out more here.

Campaigning for Change

After losing someone to an epilepsy related death many go on to raise awareness of the risks associated with epilepsy. Some campaign for better services, or visit their health providers with information in the hope that what they do will reduce the number of deaths. If you would like to get involved, you can find out more here.