People with epilepsy

Thank you for supporting SUDEP Action Day!

 Wherever you are in the world,  thank you for getting involved in SUDEP Action Day!

Join us by taking action to help you and others with epilepsy learn about SUDEP, and how you can self-manage your epilepsy by reducing risk.

Below are some ideas of how you can get involved.

You may also find extra ideas on your local epilepsy organisation’s website. You can find a list of those supporting the day here.

Don’t forget to join us over on our Facebook event page too.

This year's theme - #ACT

SUDEP and epilepsy deaths raise a lot of questions. On top of that, we also know there is much which can be done to keep people with epilepsy safer and prevent more epilepsy deaths from happening each year – we’re here to help take action.

 Join us for SUDEP Action Day 2018. We want you to ACT 

Ask questions
  • Why don’t more people know about SUDEP?
  • What are the risk factors I should know about?
  • How can I reduce my risks?
  • What should I ask my clinicians?
Communicate
  • Share your stories – how have you been helped to manage your epilepsy and risks?
  • Can you share with us your top tips on how people with epilepsy can speak to clinicians, friends and family members about risk?
  • Can you share with us why knowing about risk is important?
Take action
  • Share our key questions, resources and SUDEP Action Day information on social media to others can #ACT
  • Take positive action – tips from infographic/poster
  • Use our info leaflets, info pages and safety tools to help promote awareness to people with epilepsy and their families

 

Top 4 things you can do:

Join the epilepsy community and #ACT

Join the community by supporting the online campaign:

 

Speak up for people with epilepsy, they deserve good care

Help to reduce risks and keep people with epilepsy safer:

  • You should have a yearly epilepsy review with your health professional to check for any changes
  • Consider using a seizure diary or app to help you keep an eye on your epilepsy: even if you are seizure free or your seizures are controlled, it can still help!
  • Check out any national epilepsy guidelines for information to help you know the care to expect

(Remember: don’t make any changes to do with your epilepsy without speaking to your health professional first)

    Wondering why you need to know about SUDEP?

    Learn more about what SUDEP is and other epilepsy risks 

     

    • Take a look at the What is SUDEP? and Downloads pages for key information and advice: understanding your condition is a powerful step to reducing risk.
    • Talk to your health professionals about SUDEP and any positive actions you can take to minimise risk
    • Do you belong to any epilepsy groups? Share this information with them too
      Show others why they should smash the stigma

      Knowledge can save lives!

      Help us smash the stigma by talking openly and honestly about your epilepsy, telling those around you how they can:

      • Support you day-to-day
      • Help during a seizure or emergency