Be a part of SUDEP Action Day – 23 October 2018

SUDEP Action Day is a special day which brings organisations and people together to raise awareness of SUDEP worldwide. Originally launched on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.

Because there are three epilepsy-related deaths a day in the UK alone – awareness is not enough, it’s time to take action!



This year's theme - #ACT
SUDEP and epilepsy deaths raise a lot of questions. On top of that, we also know there is much which can be done to keep people with epilepsy safer and prevent more epilepsy deaths from happening each year – we’re here to help take action.

Join us for SUDEP Action Day 2018. We want you to ACT

A sk questions
  • Why don’t more people know about SUDEP?
  • What are the risk factors I should know about?
  • How can I reduce my risks?
  • What should I ask my clinicians?
C ommunicate
  • Share your stories – how does your organisation help people with epilepsy to manage their risks and live safer lives?
  • (UK Based) Can you show your support for our SUDEP & Seizure Safety Checklist and EpSMon tools which help people with epilepsy, and their clinicians, communicate about risk?
  • Top tips on how people with epilepsy can speak to clinicians, friends and family members about risk
  • People with epilepsy sharing why it is important to know about risk?
T ake action
  • Take positive action – tips from infographic/poster
  • Specific info and advice for clinicians?
  • Promotion of our info leaflets, info pages and safety tools


Why it's easy to join
No matter how big or small, we would love for you to be part of it.

It could be via any of these simple ways:

  1. Just like, share or retweet our social media posts on the day
  2. Use the hashtags – #SUDEPActionDay2018 and/or #ACT
  3. Change your social media profile picture to the event logo
  4. Take to social media using the SUDEP Action Day resources
  5. Create a news article for your organisation’s website to share how you are supporting the day


Don’t forget to use the hashtags so we can see what you are doing and cheer you on. We also love to see pictures of how other organisations are getting involved so do send them through!

As usual, we’ve created new resources to help your organisation take part in the day – these are available to download here.

There is also a new t-shirt transfer will be available this year to also help you show you’re getting involved in this worldwide event.

Register your support today and be part of a global campaign to reduce SUDEP and save lives.

For further support and queries contact our Communications Officer:


Why will you benefit from taking part?
There are many benefits to participating in this global awareness day. You will:

  • be a part of a worldwide event to reduce SUDEP
  • be part of a global movement to promote better monitoring of safety and risk in epilepsy
  • encourage people with epilepsy to learn about SUDEP
  • have access to free downloadable SUDEP Action Day resources for use on the day
  • have the opportunity to raise funds for your own SUDEP awareness event

Register your support today and be part of a global campaign to reduce SUDEP and save lives.

For further support and queries contact our Communications Officer:


We look forward to you joining us this year!

Participating Organisations





North America




Central America
South America