Thank you for getting involved and taking action this SUDEP Action Day!
Join us and #ACT against the challenges linked to SUDEP.
Whether you have lots or a little time to give, you can play an important part in helping us bring epilepsy and SUDEP out of the shadows to help save lives.
Thank you for your support and all you do to help raise awareness both within your profession and with your patients.
Some ideas for how you can help get involved, and steps you could take as part of your care for people with epilepsy are below:
Top 5 things you can do:
Pushed for time? Why not:
- Create a SUDEP Action Day display?
- Share the campaign messages before, during and after the day via social media?
- Use the hashtags #ACT and #SUDEPActionDay2018 to tell us how you’ve helped take action on SUDEP and epilepsy risks
- Show you support the day with a SUDEP Action Day iron on T-shirt Transfer
Discuss SUDEP and risk with your patients
Share how knowing about SUDEP is important . Be aware of patients with epilepsy:
Not attending appointments or medical reviews,
Not picking up prescriptions,
Experiencing changes to their epilepsy, mood or lifestyle
Promote best practice
Show why it’s important to discuss and understand epilepsy risks
Consider using available endorsed resources as part your clinical practice to help discuss and monitor rising risks and any in your patients’ condition to:
Promote positive, routine discussion of risk to help empower patients’ self-management
Signpost to Epilepsy Organisations
For information on how people with epilepsy can reduce risks and manage their epilepsy to keep themselves safer.
Often the leaflets are free and are specific for professionals too!
Support those affected by SUDEP
If you hear of an epilepsy death in your department / organisation, signpost the family and any colleagues involved, to specialist epilepsy bereavement services.
Is there a deaths registry they can complete? Anyone linked to an epilepsy death can share information to help inform future research.
Get your colleagues involved in our #ACT campaign
- Share the campaign materials with your colleagues.
- Create an epilepsy information board: include key facts about SUDEP and epilepsy – signpost to epilepsy organisations.
- Are there training resources to help extend your knowledge? Could you hold a staff training day on the topic? Many epilepsy organisations have resources for this.