Campaigners

Thank you for taking action this SUDEP Action Day!

We hope people from around the world get involved in SUDEP Action Day 2019!

By uniting to take #5forEpilepsySafety locally, nationally and internationally, we move closer to bringing epilepsy and SUDEP out of the shadows to help save lives. 

Below are some ideas for how you can get involved in this year’s campaign. We can’t wait to hear what other plans you may have!

Use our Facebook event page to share your ideas, images and support others who are getting involved.

We look forward to you joining us this year!

This year's theme - #5forEpilepsySafety

As leaders in SUDEP and epilepsy deaths for over 24 years, SUDEP Action know the topic of SUDEP raises questions and can be worrying for some to think about. But SUDEP Action Day is here to help people take small positive steps towards reducing epilepsy risks.

This year we want you to take #5forEpilepsySafety

Whether you choose to do one thing or five (or more!) taking #5forEpilepsySafety can help save lives by sharing risk factors, asking questions, writing to your MP or talking about your epilepsy with friends and family.

Your support for SUDEP Action Day is so important

Not matter how you feel able to get involved, we would love for you to be part of it. You could support by:

1. Just liking, sharing or retweeting our social media posts on the day

2. Using the hashtags – #SUDEPActionDay2019 and/or #5forEpilepsySafety

3. Changing your social media profile picture to the event logo

4. Organise a fundraising or awareness event using SUDEP Action and SUDEP Action Day resources – these are great ‘actions’ you can take in your local area!

 Don’t forget to use the hashtags so we can see what you are doing and cheer you on.

Take #5forEpilepsySafety with these 5 Actions:

1. SHARE

Knowledge saves lives. Join the community by supporting the online campaign:

  • Share the campaign key messages, infographics and posters. Could you take a picture holding them?
  • Share pictures of how you get involved in SUDEP Action Day, to shout about SUDEP and epilepsy risks.
  • Show your support the day with a SUDEP Action Day iron on T-shirt Transfer
  • Use the #5forEpilepsySafety hashtag to ask questions and highlight the challenges linked to SUDEP and epilepsy risks.
2. ASK

To raise local awareness can you ask businesses to take #5forEpilepsySafety to prompt change?

Consider:

  • Could you ask local businesses to share epilepsy risk information in their newsletters?
  • Would your local newspaper to run a feature on SUDEP and epilepsy risks?
  • Could you find Schools, Colleges and Universities or local groups such as Sports Clubs, who may be looking for charities or organisations to support
3. JOIN THE FIGHT

Help create change by sharing your experiences with us:

 

  • Notice boards, shop windows and counter tops are all great places to ask if you can leave our leaflets & resources for others to see
  • Give leaflets and resources to your local GP for them to create a display on epilepsy risks and SUDEP
  • Could you participate in local events raising funds and awareness for SUDEP at village fetes, carnivals, sport events or annual meet-ups such as Christmas markets?
4. TALK

 Add to the call to take #5forEpilepsySafety

  • Join the online Facebook campaign
  • Through local and national press – shout about what you are doing for SUDEP Action Day. Contact us of you need support or advice.
  • By contributing to an epilepsy deaths registry if you have been bereaved by epilepsy (Anyone linked to an epilepsy death can share vital information to shape future research)
5. WRITE

Would you be able to take #5forEpilepsySafety and organise a fundraiser?

  • Contact your local GPs or clinicians asking them to register for the SUDEP & Seizure Safety Checklist if they haven’t already
  • Write to your local MP so that they can become an epilepsy ambassador
  • If you feel able you can also share your story in our My Story section