People with epilepsy

Thank you for supporting SUDEP Action Day!

 Wherever you are in the world,  thank you for getting involved in SUDEP Action Day!

Join us by taking action to help you and others with epilepsy learn about SUDEP, and how you can self-manage your epilepsy by reducing risk.

Below are some ideas of how you can get involved.

You may also find extra ideas on your local epilepsy organisation’s website. You can find a list of those supporting the day here.

Top 4 things you can do:

Join the epilepsy community in asking #WHY

Support the online campaign:

  • Share the campaign key messages, infographics & posters. Could you take a picture holding them?
  • Share pictures of how your involvement in SUDEP Action Day, to shout about SUDEP & epilepsy risks.
  • Show you support the day with a SUDEP Action Day iron on T-shirt Transfer
  • Use the #WHY hashtag to ask questions and highlight the challenges linked to SUDEP & Epilepsy risks. For example:

Why is talking about SUDEP important?
Why are you involved in SUDEP Action Day?

Speak up for #WHY people with epilepsy deserve good care

Help to reduce risks and keep people with epilepsy safer:

  • You should have a yearly epilepsy review with your health professional to check for any changes
  • Consider using a seizure diary or app to help you keep an eye on your epilepsy: even if you are seizure free or your seizures are controlled, it can still help!
  • Check out any national epilepsy guidelines for information to help you know the care to expect.

(Remember: don’t make any changes to do with your epilepsy without speaking to your health professional first)

      Wondering #WHY you need to know about SUDEP?

      Take a look at the What is SUDEP?and Downloads pages for key information and advice: understanding your condition is a powerful step to reducing risk.

      • Talk to your health professionals about SUDEP & any positive actions you can take to minimise risk
      • Do you belong to any epilepsy groups? Share this information with them too

      Show others #WHY they should smash the stigma

      Help us smash the stigma by talking openly & honestly about your epilepsy, telling those around you how they can:

      • Support you day-to-day
      • Help during a seizure or emergency