Campaigners

Thank you for taking action this SUDEP Action Day!

We hope people from around the world get involved in SUDEP Action Day 2017!

By uniting to take local, national and international action, we move closer to bringing epilepsy and SUDEP out of the shadows to help save lives. 

Below are some ideas for how you can get involved in this year’s campaign. We can’t wait to hear what other plans you may have!

Use our Facebook event page to share your ideas, images and support others who are getting involved.

Top 4 things you can do:

Join the epilepsy community in asking #WHY 

  • Share the campaign key messages, infographics & posters. Could you take a picture holding them?
  • Share pictures of how you get involved in SUDEP Action Day, to shout about SUDEP & epilepsy risks.
  • Show you support the day with a SUDEP Action Day iron on T-shirt Transfer
  • Use the #WHY hashtag to ask questions and highlight the challenges linked to SUDEP & Epilepsy risks. For example: 

#Why clinicians & people with epilepsy should discuss SUDEP
#Why you are getting involved in SUDEP Action Day

  • Don’t forget to use the campaign hashtags: #WHY and #SUDEPActionDay2017

Spot opportunities

To raise local awareness & take action to prompt change; can you share the campaign resources, do a talk or hold a stall?

Consider:

  • Notice boards, newsletters, free local papers, shop windows.
  • Schools, Colleges & Universities or local groups such as: Service or Sports Clubs, who may be looking for charities or organisations to support.
  • Local events: village fetes, carnivals, sport events or annual meet-ups such as Christmas markets

    Add to our call to action

     Help create change by sharing your experiences with us:

    • Via the online campaign
    • Through local & national press
    • By contributing to an epilepsy deaths registry if you have been bereaved by epilepsy (Anyone linked to an epilepsy death can share vital information to shape future research)

      Tell someone #WHY they should know about SUDEP & support SUDEP Action Day 

      Share your story & #WHY knowing about SUDEP and Epilepsy risks is important to instantly raise awareness & encourage others to take action with us.