About the Campaign

 Launched on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.


 Why is it  called SUDEP Action Day?

Because there are three epilepsy-related deaths a day in the UK alone – awareness is not enough, it’s time to take action!

That is why from 2017, this international day, supported by organisations across the world, is changing its name from Awareness to Action. We hope you join us again this year in leading the way however you can, wherever you are in the world.

Our theme is: #Why

As leaders in SUDEP and epilepsy deaths for over 21 years, SUDEP Action know the topic of SUDEP raises a lot of questions. We’re here to help tackle them. Join us for SUDEP Action Day 2018 to shed light on the challenges and WHY questions that SUDEP raises, to see what answers are already out there, the action being taken to solve these questions and what more needs to be done.

On Tuesday 23 October 2018, we want YOUR help to raise these ‘why’ questions. These may be very different depending on where you are in the world.

We want you to help us shine a light on the questions raised about SUDEP, such as:

  • Why don’t more people know about SUDEP?
  • Why is talking about SUDEP important?
  • Why should people with epilepsy and their clinicians know about SUDEP risks?
  • Why do you support SUDEP Action to help tackle SUDEP and Epilepsy deaths?
  • Why have you taken part in fundraising/awareness events to help shine a light on SUDEP and epilepsy-related deaths?
  • Why is it important to you that others get involved in SUDEP Action Day 2017?


Take whichever questions you like and use that as your talking point to get involved. Our free resources can be shared to help spread this message and help tackle these #Why questions.


SUDEP stands for sudden

Unexpected Death in Epilepsy

Aims and Key Messages:

SUDEP is linked to seizures;

better control is the best way

of reducing your risk

There are things you can do to reduce your risk of SUDEP such as:

  • Taking your medication regularly and reliably.
  • Speak to your doctor before making any changes to your medication. 
  • Discuss any lifestyle changes such as having a baby or going to university with your doctor. 
  • Avoid excess alcohol consumption and using recreational drugs
  • Make sure you have regular reviews.
  • Tell your doctor if your seizures have changed.
  • Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
  • If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.