Because there are 21 epilepsy deaths a week in the UK alone – awareness is not enough, it’s time to #SpeakUp2SaveLives
That is why from 2017, this international day, supported by
The pandemic has highlighted huge inequalities and we know that SUDEP and epilepsy deaths are one of the neglected areas, made worse by COVID-19. Thousands of people with epilepsy, their carers and health workers report epilepsy risk has worsened, and bereaved families say pain they have lived with for decades has been made worse during 2020.
That is why this year we want you to #SpeakUp2SaveLives and encourage vital conversations on epilepsy risks and SUDEP.
Whether you choose to do one thing or five (or more!) if you #SpeakUp2SaveLives you will be raising much needed awareness which could save lives through sharing risk factors, asking questions, writing to your MP or talking about your epilepsy with friends and family.
Together we can #SpeakUp2SaveLives this SUDEP Action Day!