About the Campaign

 Launched on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.

#SUDEPACTIONDAY2019

 Why is it  called SUDEP Action Day?

Because there are 21 epilepsy deaths a week in the UK alone – awareness is not enough, it’s time to take action!

That is why from 2017, this international day, supported by organisations across the world, is changing its name from Awareness to Action. We hope you join us again this year in leading the way however you can, wherever you are in the world.

As leaders in SUDEP and epilepsy deaths for over 24 years, SUDEP Action know the topic of SUDEP raises questions and can be worrying for some to think about. But SUDEP Action Day is here to help people take small positive steps towards reducing epilepsy risks.

This year we want you to take #5forEpilepsySafety

Whether you choose to do one thing or five (or more!) taking #5forEpilepsySafety can help save lives by sharing risk factors, asking questions, writing to your MP or talking about your epilepsy with friends and family.

Find out how you can take #5forEpilepsySafety and join us for SUDEP Action Day 2019:

SUDEP stands for Sudden Unexpected Death in Epilepsy

Aims and Key Messages:

SUDEP is linked to seizures;

better control is the best way

of reducing your risk

There are things you can do to reduce your risk of SUDEP such as:

  • Taking your medication regularly and reliably.
  • Speak to your doctor before making any changes to your medication. 
  • Discuss any lifestyle changes such as having a baby or going to university with your doctor. 
  • Avoid excess alcohol consumption and using recreational drugs
  • Make sure you have regular reviews.
  • Tell your doctor if your seizures have changed.
  • Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
  • If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.