About the Campaign

 Launched on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.

#SUDEPACTIONDAY2018

 Why is it  called SUDEP Action Day?

Because there are three epilepsy-related deaths a day in the UK alone – awareness is not enough, it’s time to take action!

That is why from 2017, this international day, supported by organisations across the world, is changing its name from Awareness to Action. We hope you join us again this year in leading the way however you can, wherever you are in the world.

 SUDEP and epilepsy deaths raise a lot of questions. On top of that, we also know there is much which can be done to keep people with epilepsy safer and     prevent more epilepsy deaths from happening each year – we’re here to help take action.

 Join us for SUDEP Action Day 2018. We want you to ACT

Ask questions
  • Why don’t more people know about SUDEP?
  • What are the risk factors I should know about?
  • How can I reduce my risks?
  • What should I ask my clinicians?
Communicate
  • Share your stories – how have you been helped to manage your epilepsy and risks?
  • Can you share with us your top tips on how people with epilepsy can speak to clinicians, friends and family members about risk?
  • Can you share with us why knowing about risk is important?
Take action
  • Share our key questions, resources and SUDEP Action Day information on social media to others can #ACT
  • For bereaved families – completing the Epilepsy Deaths Register, 1000voices
  • Take positive action – tips from the infographic/poster
  • Specific info and advice for clinicians?
  • Promotion of our info leaflets, info pages and safety tools for people with epilepsy and their families

 

SUDEP stands for sudden

Unexpected Death in Epilepsy

Aims and Key Messages:

SUDEP is linked to seizures;

better control is the best way

of reducing your risk

There are things you can do to reduce your risk of SUDEP such as:

  • Taking your medication regularly and reliably.
  • Speak to your doctor before making any changes to your medication. 
  • Discuss any lifestyle changes such as having a baby or going to university with your doctor. 
  • Avoid excess alcohol consumption and using recreational drugs
  • Make sure you have regular reviews.
  • Tell your doctor if your seizures have changed.
  • Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
  • If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.