About the Campaign
Launched on 23 October 2014 (as SUDEP Awareness Day), it shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness.
Because there are 21 epilepsy deaths a week in the UK alone – awareness is not enough, it’s time to take action!
That is why from 2017, this international day, supported by
Find out how you can take #5forEpilepsySafety and join us for SUDEP Action Day 2019:
There are things you can do to reduce your risk of SUDEP such as:
- Taking your medication regularly and reliably.
- Speak to your doctor before making any changes to your medication.
- Discuss any lifestyle changes such as having a baby or going to university with your doctor.
- Avoid excess alcohol consumption and using recreational drugs
- Make sure you have regular reviews.
- Tell your doctor if your seizures have changed.
- Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
- If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.